My Leaf is an app that allows patients with rare diseases to control and manage their day-to-day life, as well as connect with other people. In addition, it is an ideal tool for doctors and researchers to follow the evolution of the patient or the results of a clinical trial.
One more step in the development of personal monitoring, until now focused almost exclusively on leisure or user toning.
My leaf, which has been developed in Spain, allows:
Daily tracking. Where patients can manage and control their day to day (intensity of symptoms, medications, therapeutic compliance, adverse reactions, crisis, physical activity, etc).
Social network. A place to connect with patients who have the same diagnosis, or at least the same symptoms. Where to form communities and find filtered information selectively for each one.
Evolution and prediction. By using Big Data techniques, MyLeaf is prepared to be able to look for patterns and relationships not established so far, as well as predict episodes and important moments for patients.
It should be remembered that rare diseases:
- They affect less than 1 person in 2,000
- There are between 5,000 and 7,000 diseases
- The vast majority of genetic origin
- 20% have chronic pain
- More than 25 million Europeans affected